As a mother and family of people with autism spectrum, I am always willing to share experiences that might help or raise awareness of the difficulties and challenges of living with autism. The key for us as a family has been to comfort the need to be in control of everything and everyone plus to have perfection in everyday activities.
We tried to meet this emptiness and demands of perfection by buying things or having activities that would do just that, even if it meant cancelling our own social life. Problems with timing started very early in my son's life, breakfast on time, not a minute later, transportation, also on time, etc. Delays and cancellations were never allowed, those issues due to bad weather or other were followed by very aggressive tantrums that could last up to four hours. Dealing with those was very and still hard, especially if we are in an open area like a terminal, or street.
We deal with those much better by being at home, keeping him away from danger.
If I could do something different back then I would remove all the things that brought perfection or high expectations.
The whole family remember the panics when a sock with the day of the week sewed on it went missing, screams, shouts, crying and chaos felt like an eternity, we eventually found the other sock but the panic and exhaustion were awful for all of us.
This obsession followed other obsessions like wearing fake glasses to school, this also brought crazy mornings when misplaced. Sebbi once misplaced his glasses and we only could find the fancy glasses he wore to a party, the glasses were Elton John’s style and as a joke, I said just wear those, Sebbi’s sense of humour is very different so he said yes mum. He was going to wear Elton John’s sunglasses to school. Those seemed casual issues but were traumatic for all of us as we felt like a volcano was just about to erupt.
If I could go back in time socks with the days of the week on them would be a total no, also things that can go easily missing, would be also a no. The amount of socks that we needed to buy to replace the missing ones was crazy and not good for the planet!
We make our lives easier by simplicity, this applies to lots of issues whether you have autism or not and I think especially if you have autism.